Hospital Chronicles: 3

Posted on February 12, 2014

Oh what an interesting  couple of days. What a mess. Where to start? How about I where I left off.

About two days ago I was woken up by my RT to do my treatment. He had a person following him around that day as a shadow person, kind of like in training. There are certain settings to the way treatments are done, and one of them is that it pauses every five minutes. I don’t like to do the pauses because when it pauses my muscles relax a bit and then once it starts back up it hurts until my body readjusts and kind of clenches up. I was about to tell him about that, but right when I said “but I can’t do this one because-” and he cut me off and yelled “IT’S JUST TWO EXTRA SECONDS ELIZABETH! JUST DO IT!” And I was about to tell him “Um, excuse me, don’t talk to me like that.” But I didn’t feel up to up to arguing. The nurse that was in my room at the time bringing me my pills made this shocked face. Once I got a word in edgewise about why I didn’t like the pausing he gave me all of the attitude and was like “Fine! Shut turn it off I will go ask the doctor.” He was really snappy, and he was short and rude with me. Once he left, the guy that was shadowing him told me “Oh my gosh, I am so sorry. I think he is grumpy because he has to have someone follow him all day.” And if that wasn’t bad enough, he went out and told my nurse I didn’t take my medicines and was hiding them in my bed. That is a COMPLETE lie. I had taken nearly all of my pills, except for my two very large, horse-pill sized vitamins, on top of my sheets, in plain view, because I didn’t want to take them while I was shaking, and was going to wait until after my treatment. One, it bothers me because that makes staff not trust me, and two, that could jeopardize my chances for a transplant. They could take me off of the list for non-compliance.

I told his boss about the incident later that day because I wanted to request a different RT for the rest of my treatments. When I told her about what happened she said to me “Can I just say, he is really kind of prissy, and honestly I think he bitches more than most of the women here do.” So we giggled. Haha. I like her, she’s fun. She bought me some Mountain Dew. 😉 I didn’t want to get anyone in trouble but the woman told me there were previous incidents with other patients and it needed to stop.

Yesterday, I had been up for 36 hours with maybe like two little two hour, lightly slept, naps in between. I was very lethargic and was kind of falling asleep in conversations and start sleep talking and didn’t make any sense. Once they told me I was sounding very confusing it started to worry me. I was worrying that I was having a neurological problem or a brain tumor or something, so I had a panic attack and they eventually had to give me haldol. I had had a couple major panic attacks before, including one during my chemistry final sophomore year of high school, where I blacked out and when I “woke up” I had claw marks all over my arm and it was bleeding. It was all kind of a nightmare and there was a lot of confusion with different people, problems with communication and a lot of overreacting.

So that’s how my stay has gone since HC:2 (Hospital Chronicles: 2)

Ttyl– Liz

20 Replies to "Hospital Chronicles: 3"

  • Terry
    February 15, 2014 (5:08 pm)

    Tell that RT, “hey, I know there’s nothing you can do about being short, but, there is no reason for being rude.” bahahaha! Hang in there Elizabeth, 😉

  • Tami Serpa
    February 16, 2014 (9:08 pm)

    Hi Elizabeth,
    I watched your interview on TV and visited your website and blog. You have had a lot of adversity in your young life yet you have matured into an inspirational young lady to so many. Thank you for sharing your story and know that I’m one who will follow it daily.
    Love & Support,

  • Terry
    February 17, 2014 (12:07 am)

    I agree with my sister Tami, you are an inspirational young lady. I’m also going to follow your blog, I want to see if you put any other RT’s in their place. Peace Out and hang tough Liz 😉

  • Mike
    February 18, 2014 (12:16 pm)

    I saw an article about you in the local paper and want to wish you all the best.

    I read an article in the New Yorker a few years back explained what CF is and what the treatment entails. The article is by Atul Gawande, a staff writer who has since gone on to write a few acclaimed books about medicine and has won a National Book Award for Nonfiction. I thought you might want to add a link to the article on your Links page. The article is at

  • Terry
    February 19, 2014 (7:31 pm)

    Hope you had a good day today Liz !

  • Andres
    February 27, 2014 (12:00 pm)

    ugh, RTs can be mean at times. I’m Andres i herd about you with this blog and your basically my neighbor in the hospital.. I’m also on 3North

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