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Hospital Chronicles: 3

Oh what an interesting  couple of days. What a mess. Where to start? How about I where I left off. About two days ago I was woken up by my RT to do my treatment. He had a person following him around that day as a shadow person, kind of like in training. There are certain settings to the way treatments are done, and one of them is that it pauses every five ...

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Hospital Chronicles: 2

I'm still in the hospital.. ugh :(. I have been her for two weeks and two days, and I will be here for another week, for sure, and maybe a noter week or two after that. It wouldn't be so bad if I was allowed to leave my room. I am trapped in this 12 by 12 room all day, everyday. Even prisoners in maximum security get an hour a day outside. What's happened since my ...

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My Parents & Guilt

Sometimes I get this thought that I can't shake. I feel like the people who actually have CF have it easy. Yeah, CF sucks but I mean, I was born with it. I have had it my whole life, and it's not something I've had to get used to. It's just what I have known forever. What I am saying is, my parents lived their whole lives as normal people. They got up, got dressed, ...

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Crazy Admission

So, I haven't really posted in a while, but some crazy stuff has been going on. Saturday morning I woke up and my lips were a little blue. The day before I had really been struggling to breathe and function. The blue lips were like the last straw, so I huffed and puffed my way to the ER. Apon arrival to the ER my dad went to park the car and I squatted down ...

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Transplant is a touchy subject for everyone involved. Families may not want bits and pieces of their loved one shipped off to who knows where. A dying person in need of an organ may not want to take one, even though most likely their entire family is wishing that they choose to live. The thing is, though, it's not choosing to live or die, it's choosing how you live ...

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