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Life After Transplant, So Far

Hello everybody. I know it's been a while, but I have had to do a lot of healing and having family time lately. A lot has happened since I last blogged about my experiences. Lets see... I got my transplant, and then I told you all about it. But what I didn't really talk about was when I went to see my lungs in person afterwards. I got to hold them, poke them, squeeze ...

Looks Can Be Deceiving

A lot of people say, "oh you look better today," and "but you don't look sick." No! Stop it! I can look fine, but not feel fine. I can look better one day, and feel completely worse. That's the problem with CF, you can look normal but feel close to death. I personally think that Eva Markvoort said it the best in her video titled "Nights Like These" when she was ...